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Literature Review Featured

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Literature Review


 

Study

Setting

Participants and sample size

Design/methods

Focus and instruments

Outcome-

results

1.Teno, J., Casarett, D., Spence, C., & Connor, S. (2012). It is "too late" or is it? Bereaved family member perceptions of hospice referral when their family member was on hospice for seven days or less. Journal Of Pain & Symptom Management, 43(4), 732-738.

Seven hospice programs nationwide

 

N=100

Family of patient who died less than 7 days from admission to hospice.

 

Audiotape of a brief interview Related to timing of referral to

Hospice, independent of review of results to look for themes.

 

Nurse Interview for completion of FEHC survey.

 

Referral timing to hospice is influenced by family recollection and perception of death.

Provider education needed to increase timely referral.

2. Miceli and Mylod (2003)

Miceli, P., &Mylod, D. (2003). Satisfaction of families using end-of-life care: current successes and challenges in the hospice industry. American Journal Of Hospice & Palliative Care, 20(5),

 

Nationwide 17 hospices agencies

N=1839

Bereaved Family/friends of hospice patients.

Qualitative/ Likerttype

scale, and For ease of interpretation in data

analysis, scores were then converted

to a 100 point scale

*very poor = 1=0 points

*poor =2 =25 points

*fair = 3, =50 pt

*good = 4,=75 points

*very good =5=100 points

 

Family satisfaction with hospice services. The Hospice Care Family Survey

(©2002, Press Ganey Associates,

Inc.)

Overall families were high satisfied with hospice services. Major concern found was timing of referral.

3. London, M. R., &Lundstedt, J. (2007). Families speak about inpatient end-of-life care. JOURNAL OF NURSING CARE QUALITY, 22( 2), 152-158.

 

community hospital

inpatient end-of-life care.

 3 Providence Health System hospitals in Portland, Ore.

 Families with patients who had died in intensive care unit.

The survey consisted of 17 Likert-type scales with items of satisfaction, 3 open –ended questions and 3 demographic items.

 46% of families reported that their loved ones spent most time in critical care settings. 14

% in cancer units, 22% in medical units, 9% in cardiac units and 10% in other units, such as neurology, orthopedics and surgery. From the 855 Reponses on surveys, 352 gave negative comments and 614 positive comments.

 A cover letter and survey are sent to invite participation and to get informed recipients. the survey was mailed in seven to nine weeks after the death of one of their family members together with a letter of condolence. 2796 surveys are mailed to participants, and 855 of them were returned

 Indicate that though patients experience problems especially in the management of pain, and that their wishes towards the  end of life care is hardly respected and also experience communication problems. In busy wards, nurses are likely to be concerned with other issues and this tampers with the quality of care to all patients.

 Families reported general satisfaction with the information they were provided with, and care received, and compassion and respect demonstrated.

4. Schockett, E. R., Teno, J. M., Miller, S. C., & Stuart, B. (2005). Late referral to hospice and bereaved family member perception of quality of end-of-life care. Journal of Pain and Symptom Management, 30(5), 400-407.

 

Mortality follow-back survey are conducted on bereaved families from 2 non-profit hospices.

Bereaved family members from persons who were referred too late showed lower satisfaction towards hospice services. 13.7% of the deeded patients were referred too late.

   

 Families reported lower satisfaction with the service from hospice. They also showed a high rate of unmet needs especially on information that they should expect during death. The families also showed low confidence for care offered to patients . They were concerned with the coordination of care and overall low rate of satisfaction. The results show the need for improved services for a short stay hospice services that are beneficial to families and patients and for physicians to undertake early hospice admission.

5. Teno, J. M., Shu, J. E.,

Casarett, D., Spence, C.,

 Rhodes, R., & Connor, S.

 (2007). Timing of referral to hospice and quality of care: Length of stay and bereaved family members’ perceptions of the timing of hospice referral. Journal of Pain and Symptom Management, 34(2), 120-125.doi:

10.1016/j.jpainsymman.2007.04.014

 

106,514 surveys from 631 hospices from Palliative Care Organization and The National Hospice

 106,514 surveys from 631 hospices

 The researchers developed a website for hospice to provide data.

 The researchers used structured reviews of existing consumer focus and guidelines the FEHC is developed by  researchers. The initial instrument was modified and mode test conducted for self-determination of the survey.

 Varying perception from bereaved families towards the end of life and the too late perception show unmet needs on quality and stay in hospice care.

6. Rickerson, E., Harrold, J., Kapo, J., Carroll, J., &Casarett, D. (2005). Timing of hospice referral and families' perceptions of services: are earlier hospice referrals better. Journal Of The American Geriatrics Society, 53(5), 819-823. doi:http://dx.doi.org.proxy.library.maryville.edu/10.1111/j.1532-5415.2005.53259.x

 

6 Hospice of Lancaster County. Lancaster within twelve months 2003-2004.

 372 visitors were eligible for this inclusion. No family of the patient was approached to participate in any of the 73 visits. This is because the recruitment of research was intrusive such as family and patients with imminent patient’s death and they appeared distressed. In the 299 visits, the intake nurse would approach family or patient. 18 of them refused and the final sample reduced to 281. They were given an interview n= 84 interview analysis was for a  patient and family and n=9 the patient alone and n=182 were unable to participate.

The research made use of semi-structured interviews conducted at the time of hospice enrolment and one month after the death of a patient. Descriptive statistics are provided to summarize family and patient response on questions about the hospice services. The agreement between families and patients is evaluated by use of a quadratic weighted kappa statistics. Interviews assess the helpfulness of six hospice services.

 Semi structured interviews and medical record review. First interview is conducted during hospice enrollment and embedded in the process of intake. During the interview, family members are asked if they had received the various groups of hospice services and if they had, how much service had helped them, and their patient.

The results of this study indicate that families receive greater benefits from long term stay in hospice services. Future efforts in defining optimal health of stay in hospice service

7. Ogasawara, C., Kume, Y., &Andou, M. (2003). Family satisfaction with perception of and barriers to terminal care in Japan. Oncology Nursing Forum, 30(5), E100-5. doi:http://dx.doi.org.proxy.library.maryville.edu/10.1188/03.ONF.E100-E105

 

Study is conducted in a Japanese national university hospital

 The sample consisted of 133 family members with the experience of caring for their loved one at the terminal cancer-stage in the university hospital between 1996, and 1998.

 A descriptive statistics including standard variation, means, and percentiles are used in the analysis of data on the perceptions of symptoms, and signs from families. this  their understanding of narcotics use. The descriptive survey is conducted after researchers obtained permission from the nursing department and supervisors in every ward.

 Investigators developed 23-tem questionnaire. that is divided into four parts which are: the expectations towards terminal care services, recognition of symptoms and signs of disease, satisfaction in terminal care and nursing care and understanding of the use of narcotics.

 Ninety percentages of participants are satisfied with nursing care, 70% are satisfied with the critical phase63% with the need of life service and 80 % with the information they received at admission.

8. Devi, P. (2011). A Timely Referral to Palliative Care Team Improves Quality of Life. Indian Journal Of Palliative Care, S14-6. doi:http://dx.doi.org.proxy.library.maryville.edu/10.4103/0973-1075.76233

 

 The article discusses different factors that lead to late referral to palliative care among care givers and palliative care team views regarding to early referral.

 

 Literature review on sources that have studied late referrals to palliative care or non-referral for people with terminal diseases and lack knowledge concerning palliative care services as well as its benefits.

 Literature survey overview

 Referrals to palliative care are always done when it’s too late to improve on the overall quality of patients suffering from cancer.

 

9. Adams, C., Bader, J., & Horn, K. (2009). Timing of hospice referral: assessing satisfaction while the patient receives hospice services. Home Health Care Management & Practice, 21(2), 109-116.

         

10. y, S., Shugarman, L. R., Lorenz, K. A., Mularski, R. A., & Lynn, J. (2008). A Systematic Review of Satisfaction with Care at the End of Life. Journal Of The American Geriatrics Society, 56(1), 124-129. doi:10.1111/j.1532-5415.2007.01507.x

 This is a systematic literature review on end-of-life care. With the aim to understand and conceptualize end-of life care.

       

11. Meyers, J., & Gray, L. (2001). The relationships between family primary caregiver characteristics and satisfaction with hospice care, quality of life, and burden. Oncology Nursing Forum, 28(1), 73-82.

         

12. Miller SC, Kinzbrunner B, Pettit P et al. How does the timing of hospice

Referral influence hospice care in the last days of life? J Am GeriatrSoc 2003;

51:798–806.

         

13. Munn, J., Hanson, L., Zimmerman, S., Sloane, P., & Mitchell, C. (2006). Is hospice associated with improved end-of-life care in nursing homes and assisted living facilities? Journal Of The American Geriatrics Society, 54(3), 490-495. doi:http://dx.doi.org.proxy.library.maryville.edu/10.1111/j.1532-5415.2005.00636.x

         

14. Teno JM, Clarridge BR, Casey V, Welch LC, Wetle T,

Shield R, Mor V: Family perspectives on end-of-life

Care at the last place of care. JAMA 2004; 291:88–93.

Home and institutional setting

3275 death certificate sampled. 549 informants could not be located and the remaining 2727 completed interviewed

 Mortality follow-back surveys for the year 2000 deaths.

In undertaking the analyses the SUDDAN version 8.0 was used to count complex design sample

 Result is that many people dying in institutions do have unmet needs such as physician communication, symptom amelioration, emotion support, and being treated with respect. They found that the deceased family members are likely to report positive dying experience of their loved ones compared those who were hospitalized.


 

 

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